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Multiple Myeloma (Bone Marrow Cancer) My Cancer Journey.

Discussion in 'Health' started by TomTwo, Mar 13, 2017.

  1. Sep 11, 2020 at 5:30 PM
    #161
    TomTwo

    TomTwo [OP] I love God but I cuss a little

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    Well it's been a couple of months since I posted. Last month I went in for my Yearly tests. And today I got back some but NOT all the results. We are still waiting on the Biopsy Cancer percentage from a Lab in Seattle Washington. My Bone Density is low (meaning easy to break) So I will be going back in for "Zometa" infusions again in 7 or 8 weeks. My results back from Seattle will determine if and when I may able to continue or discontinue taking Chemo each month.

    I hope everyone is well. If you do not feel well please go see a Dr.
     
  2. Sep 11, 2020 at 5:36 PM
    #162
    TomTwo

    TomTwo [OP] I love God but I cuss a little

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    Thanks Scott, Have a great weekend Brother!!
     
    scottalot[QUOTED] likes this.
  3. Feb 9, 2021 at 3:53 PM
    #163
    TomTwo

    TomTwo [OP] I love God but I cuss a little

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    Stick with me here: In 2017 I went through a 5 month process to prepare my stem cells and then harvest them for my transplant after we killed the Cancer with the very bad chemo.
    Well today I was reading where a man with the same kind of cancer as me got his stem cells from someone that was a match.(not his own)
    He did this in 2018 and before he got his stem cell transplant he was color blind, and now he is not colorblind anymore.
    I know I was completely gray headed before I had my stem cell transplant and now I have very little gray hair.......I guess it's a factory reset. ....Crazy.
     
  4. Mar 6, 2022 at 6:09 PM
    #164
    TomTwo

    TomTwo [OP] I love God but I cuss a little

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    Today marks 5 years since I was diagnosed with Cancer. All my Doctor kept saying to me during this long painful process is that the first five years are very important. A fairly high percentage of patients do NOT make it to the 5 year mark. I pray every day for our Troops and for everyone that has Cancer. I also pray for the caregivers and family members that watch their loved ones go through treatment. God is powerful.
    Be safe Y'all.
     
    SUMOTNK, Sprig, ImpulseRed008 and 8 others like this.
  5. Mar 7, 2022 at 8:24 AM
    #165
    dlopan

    dlopan Well-Known Member

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    My wife is in remission, no detectable cancer so all good news. I'm glad for you...
     
    Sprig, ImpulseRed008, Maint1 and 2 others like this.
  6. Mar 7, 2022 at 12:50 PM
    #166
    Doughnut Spaghetti

    Doughnut Spaghetti Well-Known Member

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    That's great brother
     
    Sprig and TomTwo[QUOTED][OP] like this.
  7. Mar 7, 2022 at 1:10 PM
    #167
    TomTwo

    TomTwo [OP] I love God but I cuss a little

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    Prayers for you both!
     
  8. Mar 7, 2022 at 1:16 PM
    #168
    TomTwo

    TomTwo [OP] I love God but I cuss a little

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    Thanks Man for staying on this ride with me.
     
  9. Aug 21, 2022 at 7:03 AM
    #169
    TomTwo

    TomTwo [OP] I love God but I cuss a little

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    Today is the 5 year anniversary of my stem cell transplant. Anywhere from 30 to 40% of the patients that have a stem cell transplant for this very painful cancer that I have do not make it to the 5 year mark. Please say a prayer today for the families that have lost loved ones to any type of cancer. I am NOT done yet. God bless everyone of you. Be Safe.
     
    Last edited: Aug 21, 2022
  10. Aug 21, 2022 at 7:27 AM
    #170
    Clidarv

    Clidarv Well-Known Member

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    Congratulations! cancer can be a rough ride. Wishing you a great today and a better tomorrow!
     
    Sprig and TomTwo[OP] like this.
  11. Dec 19, 2022 at 5:32 PM
    #171
    TomTwo

    TomTwo [OP] I love God but I cuss a little

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    Update: I went to my Dr. on Dec 2nd and they did annual blood work and bone and bone marrow biopsies. it takes several weeks for these test results to come back.
    Again this year all my tests came back negative so my Dr. has decided to suspend all my monthly chemo treatments at this time. There is no cure for this Cancer so they will monitor my blood work every 3 months to check to see if the cancer is returning.
    It will be great to be free from the very painfull monthly treatments.
    I hope everyone has a Safe and Happy Christmas Holiday !!
     
    Last edited: Dec 19, 2022
    Clidarv, 4x4spiegel, Sprig and 6 others like this.
  12. Aug 22, 2024 at 6:11 AM
    #172
    TomTwo

    TomTwo [OP] I love God but I cuss a little

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    Yesterday was my 7th anniversary of my stem cell transplant. Thanks to God and my Doctors at Emory in Atlanta I am feeling great.
     
  13. Aug 22, 2024 at 2:40 PM
    #173
    otis24

    otis24 Hard Shell Taco

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    This is very good to hear!
     
    TomTwo[QUOTED][OP] likes this.
  14. Aug 30, 2024 at 7:02 PM
    #174
    The Real Moondog

    The Real Moondog Well-Known Member

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    This is such great news! Best of luck to you and your family! Be well and stay well.
     
    nDub and TomTwo[QUOTED][OP] like this.
  15. Sep 5, 2024 at 9:14 PM
    #175
    Maint1

    Maint1 Well-Known Member

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    Great news Tom. Keep us informed!
     
    TomTwo[OP] likes this.
  16. Sep 12, 2024 at 7:12 PM
    #176
    Maint1

    Maint1 Well-Known Member

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    My Dad is having what I believe is called a CAR T treatment now. He is feeling real bad at the time, but knows it is for the best. He has been having maintenance chemo treatments but his numbers were starting to go up. I think he is only worried that he wil be home in time to go on his fishing trip this fall.
     
    TomTwo[OP] likes this.
  17. Sep 13, 2024 at 3:54 PM
    #177
    TomTwo

    TomTwo [OP] I love God but I cuss a little

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    Praying for your Father
     
    Maint1[QUOTED] likes this.
  18. Dec 6, 2024 at 6:33 PM
    #178
    dlopan

    dlopan Well-Known Member

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    I haven't talked to you in a while. Wife just got her 2nd Test back, all clear again. I hope you are ok.
    I got my weird rare skin cancer on my arm last year, the cut it our, all clear. I hate the stupid forgettable latinized names they use.
     
    The Real Moondog and TomTwo[OP] like this.
  19. Apr 3, 2025 at 2:32 PM
    #179
    aficianado

    aficianado Well-Known Member

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    back to bone stock.
    awesome!!!
     
  20. Apr 25, 2025 at 12:23 PM
    #180
    TomTwo

    TomTwo [OP] I love God but I cuss a little

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    Just finished another 3 month bloodwork everything looked good. The number of patients that are going through this are going up and up is what I am being told. One of the nurses today told me that her Husband was just diagnosed with Bone Marrow Cancer. Y’all remember to wear your gloves when changing your oil and working on your vehicles.
     
    nDub likes this.

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