50+ thread

I've got a Neurology appt previously scheduled for this coming Monday the 21rst . She will talk to me more about the findings when I see her in 4 days

 

I have no idea but it’s been a good distance. The Vermont run coming up after I go here and there to make drops it’s about 980 from here but when I parked at the motel that night I had driven 1100 and change. We have a couple board members that for fundraising they like a good spreadsheet so they want numbers from me. And I’ve gotten better about giving them what they need gas,miles,motels,but the last trip was 16something. But I did wander a bit on the way home but I was avoiding traffic,yes let’s go with that.

 

I’m going back up next week so hopefully that will be the last salt bath till fall as far north as I’m going this time I’m not going to count on spring just yet.

 

Good morning everyone!

 

Good morning all

 

Damn chuck. At least you have a better answer about the symptoms you have been having.

 

That’s a lot to swallow in a couple phone calls I’ll be thinking about you and throw in a prayer for a good outcome and some good news next time the phone rings.

 

I just got another call from the VA a few minutes ago and from the Neurology dept , I actually have (2) Neurology appts coming up . The one this coming Monday is a Neuromuscular specialist . The Neurologist I talked with last night I was scheduled to see her in June . Now the June appt has been rescheduled for August

So I'm hoping the two month longer wait is a good sign that there is no immediate concern !!!

 

Hang in there, sounds like Cystinosis could be causing havoc on your body overall. Kinda had the same issue (no Cystinosis but some really long name auto-immune disorder, inherited) so I started on mushroom extracts. Sounds hokey but my tests have been pretty normal going on 11 years now. Either way sending out good thoughts for ya.

 

aaaaaaaaaaaand again, we are California's redheaded stepchild but no relief on the tax

 

Good Afternoon Y'all!



@US Marine

Hope it all works out for you

 

Evening everyone, beautiful day today! @US Marine, Chuck hope they figure it out. Sounds like you and your docs are on top of it, fingers crossed.

 

Only if you let it get to you

 

Good evening,

Turned out to be a decent day after the thick fog this morning.

Dammit Chuck. Certainly be having a good thought for you as you and your Dr’s figure it out.

 

If it’s any consultation, my day was really poopy. Gone 2 days, a week further behind. I hate being the adult in the room at work.

 

Contrary to popular belief, shit usually rolls up hill.

 

Hmmmmmm