60+ year old thread.

MQQSE · Aug 6, 2024

95SLE said: ↑

So sorry to read this Tom. You and your wife are in my prayers.

Good afternoon. Been a crazy day today. Gym time was hard after being off on vacation for 12 days. Vacation told me to start to weight train. I am too darn weak.
Click to expand...

Tom

Ridgewalker1 · Aug 6, 2024

roundrocktom said: ↑

Good morning everyone!

I had long discussions with my wife about hospice, end of life, and her wishes ("water cremation" - no ashes; a celebration of life a year later)

My wife collapsed a week ago; she had numerous falls in the previous month. Her body hasn't absorbed any nutrients and is still slowly losing weight. She fell in the middle of the night, changing her ostomy bags, but I didn't wake until 7:30 AM that morning. So she was on the floor for a good six hours. I couldn't pick her up; in the past, she could sit up so I could get my arms under her shoulders and knees, but that morning, she didn't have the energy for that.

I put towels under her, and she could slowly clean up and put her ostomy bags back in place. I got her dressed.

I used a beach towel in my arms to help lift her to the side of the bed, and then I got her back into the bed. My daughter came over to help. We used an office chair to roll her out to the car, and my daughter was going to run her up to the ER to get her into Hospice (stabilize, they get the ball rolling to get her enrolled into hospice so she can come home).

So she gets an ER doctor who tells her, "No need for hospice; you're malnourished and just need TPN." He gets her to agree to TPN, overriding her DNR wishes, and starts transfusing blood and tons of electrolytes into her system. She feels better and decides, "Hey, I can live on TPN." We did a year of that stuff, with numerous infections and complications; she was in pure misery and made me promise never to again.

The roller coaster starts again. Finally, a good gastro doc shows up, sees a whole unit of blood being transfused into her again, and asks her, with 40 years of chrons, why they are doing this. Surgery is not an option (too much scar tissue, only 20% of her colon left). He was clear that TPN should have never been started and she should be in hospice.

Meanwhile, I am ready to go out on disability. We're both over 65, but my medical insurance covers her TPN. Once I retire, I will be on Medicare, and it's not covered. Three years ago, it was $1200 per day, probably up to $2000 per day.

Being Mortal is an excellent book. Atul Gawande believes that the medical profession's job is to "enable well-being," not just to strive for survival.

It's interesting to look at the government database to see what companies pay doctors.
https://openpaymentsdata.cms.gov/ My wife's TPN provider has paid $5 million to MDs, most of which is for consulting. The top recipient is in Austin, TX., with $350,000 paid in 2023.

Our medical system is pure insanity.

I am grateful for every sunrise and my morning espresso.
Click to expand...

My heart goes out to you two! My Dr recommended I read “Being Mortal”. I have sat with several family members till their last breath. One never gets over it. I understand here in Colorado we have an end-of-life law with assisting Dr. My plan has always been to go on a Walk-About in the mountains never to be seen again. It will be awhile because I have to many responsibilities at present raising one more grandkid, caring for my better half, assisting a neurologically ill daughter, etc.

My best wishes to you two to do what’s best!

Sage63 · Aug 6, 2024

roundrocktom said: ↑

Good morning everyone!

I had long discussions with my wife about hospice, end of life, and her wishes ("water cremation" - no ashes; a celebration of life a year later)

My wife collapsed a week ago; she had numerous falls in the previous month. Her body hasn't absorbed any nutrients and is still slowly losing weight. She fell in the middle of the night, changing her ostomy bags, but I didn't wake until 7:30 AM that morning. So she was on the floor for a good six hours. I couldn't pick her up; in the past, she could sit up so I could get my arms under her shoulders and knees, but that morning, she didn't have the energy for that.

I put towels under her, and she could slowly clean up and put her ostomy bags back in place. I got her dressed.

I used a beach towel in my arms to help lift her to the side of the bed, and then I got her back into the bed. My daughter came over to help. We used an office chair to roll her out to the car, and my daughter was going to run her up to the ER to get her into Hospice (stabilize, they get the ball rolling to get her enrolled into hospice so she can come home).

So she gets an ER doctor who tells her, "No need for hospice; you're malnourished and just need TPN." He gets her to agree to TPN, overriding her DNR wishes, and starts transfusing blood and tons of electrolytes into her system. She feels better and decides, "Hey, I can live on TPN." We did a year of that stuff, with numerous infections and complications; she was in pure misery and made me promise never to again.

The roller coaster starts again. Finally, a good gastro doc shows up, sees a whole unit of blood being transfused into her again, and asks her, with 40 years of chrons, why they are doing this. Surgery is not an option (too much scar tissue, only 20% of her colon left). He was clear that TPN should have never been started and she should be in hospice.

Meanwhile, I am ready to go out on disability. We're both over 65, but my medical insurance covers her TPN. Once I retire, I will be on Medicare, and it's not covered. Three years ago, it was $1200 per day, probably up to $2000 per day.

Being Mortal is an excellent book. Atul Gawande believes that the medical profession's job is to "enable well-being," not just to strive for survival.

It's interesting to look at the government database to see what companies pay doctors.
https://openpaymentsdata.cms.gov/ My wife's TPN provider has paid $5 million to MDs, most of which is for consulting. The top recipient is in Austin, TX., with $350,000 paid in 2023.

Our medical system is pure insanity.

I am grateful for every sunrise and my morning espresso.
Click to expand...

wishing you the best possible outcome for both of you. Just do not want to say "sorry to hear..." as that is the last thing I would think you want to hear from folks. just positive thoughtd to you botn

jwctaco · Aug 6, 2024

Ridgewalker1 said: ↑

My heart goes out to you two! My Dr recommended I read “Being Mortal”. I have sat with several family members till their last breath. One never gets over it. I understand here in Colorado we have an end-of-life law with assisting Dr. My plan has always been to go on a Walk-About in the mountains never to be seen again. It will be awhile because I have to many responsibilities at present raising one more grandkid, caring for my better half, assisting a neurologically ill daughter, etc.

My best wishes to you two to do what’s best!
Click to expand...

It’s fortunate that there’s an option

mit88 · Aug 6, 2024

hikerduane said: ↑

If that was a correction to the stock market on Monday, why the big rise today? Buyers picking up stock at lower prices that they expect to go up?
Waiting to see if I get replies from Yamaha dealers if they take trades and have the ATV I think I want.
Yesterdays mail arrival, a nickel Radius 42 stove, had many brass models already, but no nickel. A Coleman 200A lantern in the background I also received on Monday, tore down and cleaned parts, fired up late.
Duane

Click to expand...

1buzzbait · Aug 6, 2024

got these boob's in before that bisch debby.....

take this !!!

mit88 · Aug 6, 2024

roundrocktom said: ↑

Good morning everyone!

I had long discussions with my wife about hospice, end of life, and her wishes ("water cremation" - no ashes; a celebration of life a year later)

My wife collapsed a week ago; she had numerous falls in the previous month. Her body hasn't absorbed any nutrients and is still slowly losing weight. She fell in the middle of the night, changing her ostomy bags, but I didn't wake until 7:30 AM that morning. So she was on the floor for a good six hours. I couldn't pick her up; in the past, she could sit up so I could get my arms under her shoulders and knees, but that morning, she didn't have the energy for that.

I put towels under her, and she could slowly clean up and put her ostomy bags back in place. I got her dressed.

I used a beach towel in my arms to help lift her to the side of the bed, and then I got her back into the bed. My daughter came over to help. We used an office chair to roll her out to the car, and my daughter was going to run her up to the ER to get her into Hospice (stabilize, they get the ball rolling to get her enrolled into hospice so she can come home).

So she gets an ER doctor who tells her, "No need for hospice; you're malnourished and just need TPN." He gets her to agree to TPN, overriding her DNR wishes, and starts transfusing blood and tons of electrolytes into her system. She feels better and decides, "Hey, I can live on TPN." We did a year of that stuff, with numerous infections and complications; she was in pure misery and made me promise never to again.

The roller coaster starts again. Finally, a good gastro doc shows up, sees a whole unit of blood being transfused into her again, and asks her, with 40 years of chrons, why they are doing this. Surgery is not an option (too much scar tissue, only 20% of her colon left). He was clear that TPN should have never been started and she should be in hospice.

Meanwhile, I am ready to go out on disability. We're both over 65, but my medical insurance covers her TPN. Once I retire, I will be on Medicare, and it's not covered. Three years ago, it was $1200 per day, probably up to $2000 per day.

Being Mortal is an excellent book. Atul Gawande believes that the medical profession's job is to "enable well-being," not just to strive for survival.

It's interesting to look at the government database to see what companies pay doctors.
https://openpaymentsdata.cms.gov/ My wife's TPN provider has paid $5 million to MDs, most of which is for consulting. The top recipient is in Austin, TX., with $350,000 paid in 2023.

Our medical system is pure insanity.

I am grateful for every sunrise and my morning espresso.
Click to expand...

Hope you find your peace and comfort!

boatswain · Aug 6, 2024

Evening all:

after reading your post Tom, same for some of the others with not so good medical conditions,

hikerduane · Aug 6, 2024

Sorry, I'm not too mushy in passing out good wishes or thoughts in prayers and best wording. We've all been thru something. I've lost a couple direct line Aunts and Uncle this last year, so can relate. Down to two of moms siblings.
Duane

jwctaco · Aug 6, 2024

hikerduane said: ↑

Sorry, I'm not too mushy in passing out good wishes or thoughts in prayers and best wording. We've all been thru something. I've lost a couple direct line Aunts and Uncle this last year, so can relate. Down to two of moms siblings.
Duane
Click to expand...

Well said Duane, @67 I’ve been around the block a time or two. It’s still always tough.

ImpulseRed008 · Aug 6, 2024

So sorry to hear of the medical issues @roundrocktom . Thoughts and prayers to you both. Hope you can get the right doc's to give her the correct care for her condition.

Start with the light weights @95SLE Tom

Ridgewalker1 said: ↑

My plan has always been to go on a Walk-About in the mountains never to be seen again.
Click to expand...

I like your idea. The thought of being bed ridden and dependent on someone for everything is not what I want.

ImpulseRed008 · Aug 6, 2024

evening gang 3 1/2" so far. 1 1/2" up to noon and the 2" from noon - 7 pm
+

jwctaco · Aug 6, 2024

ImpulseRed008 said: ↑

evening gang 3 1/2" so far. 1 1/2" up to noon and the 2" from noon - 7 pm
+

Click to expand...

We got 2 ish, I feel lucky

95SLE · Aug 7, 2024

ImpulseRed008 said: ↑

Start with the light weights @95SLE Tom
Click to expand...

Doctor told me nothing over 25 lb. The objective is to use machines that do not put stress on the spine and being able to exit the machine.

Good morning. Pretty busy day today ending with listening to my son perform on his birthday. Most of the family will be there and we have cake. I am so not prepared for today's music lesson.

jwctaco · Aug 7, 2024

Morning kids, weather folks are trying to figure out if we had tornadoes or straight line winds, the guy with the steel building ripped apart doesn’t really care. Just hope the sumbag insurance company doesn’t screw him

Ridgewalker1 · Aug 7, 2024

Another hot dry day here. I am so envious of everyone getting just the right amount of rain! Our firefighters could sure use some, although they are doing a terrific job in this heat getting control of the fires. Lots of people are being able to move back into their homes. Go firefighters!

Kettlebell day! Then if not too hot, I’ll start wiring for solar on my Casita. I’d like to get that done before my mid-month trip to the Wind River area.

Do something special for yourself today and enjoy your time!

BkerChuck · Aug 7, 2024

Good morning all. We finally got a decent amount of rain in my part of PA last night. Rode home in it yesterday on the bike. Talk about isolated showers! Left work in a moderate rain, half mile north it wasn't raining and the road was dry. Go about another 3/4 mile and it's raining again. Hop on the interstate at MM28 in pouring rain get to MM31 and the road is dry with no rain, by MM32 it's pouring again! Riding in rain on a bike doesn't bother me and I've likely got more miles in rain than some folks ride in their whole riding life.

hikerduane · Aug 7, 2024

Good morning gang and gangstress,
The return to hot weather has added more burnt acreage to the Park Fire I understand, currently potentially affecting one of a few drainages where endangered salmon spawn here in commiefornia.
Picking out lanterns and stoves for later next weeks Coleman Gathering to the Kalifornia coast, most stoves and lanterns have been set out on my work bench already, waiting to get loaded up.
Duane

jwctaco · Aug 7, 2024

Morning kids

US Marine · Aug 7, 2024

roundrocktom said: ↑

Good morning everyone!

I had long discussions with my wife about hospice, end of life, and her wishes ("water cremation" - no ashes; a celebration of life a year later)

My wife collapsed a week ago; she had numerous falls in the previous month. Her body hasn't absorbed any nutrients and is still slowly losing weight. She fell in the middle of the night, changing her ostomy bags, but I didn't wake until 7:30 AM that morning. So she was on the floor for a good six hours. I couldn't pick her up; in the past, she could sit up so I could get my arms under her shoulders and knees, but that morning, she didn't have the energy for that.

I put towels under her, and she could slowly clean up and put her ostomy bags back in place. I got her dressed.

I used a beach towel in my arms to help lift her to the side of the bed, and then I got her back into the bed. My daughter came over to help. We used an office chair to roll her out to the car, and my daughter was going to run her up to the ER to get her into Hospice (stabilize, they get the ball rolling to get her enrolled into hospice so she can come home).

So she gets an ER doctor who tells her, "No need for hospice; you're malnourished and just need TPN." He gets her to agree to TPN, overriding her DNR wishes, and starts transfusing blood and tons of electrolytes into her system. She feels better and decides, "Hey, I can live on TPN." We did a year of that stuff, with numerous infections and complications; she was in pure misery and made me promise never to again.

The roller coaster starts again. Finally, a good gastro doc shows up, sees a whole unit of blood being transfused into her again, and asks her, with 40 years of chrons, why they are doing this. Surgery is not an option (too much scar tissue, only 20% of her colon left). He was clear that TPN should have never been started and she should be in hospice.

Meanwhile, I am ready to go out on disability. We're both over 65, but my medical insurance covers her TPN. Once I retire, I will be on Medicare, and it's not covered. Three years ago, it was $1200 per day, probably up to $2000 per day.

Being Mortal is an excellent book. Atul Gawande believes that the medical profession's job is to "enable well-being," not just to strive for survival.

It's interesting to look at the government database to see what companies pay doctors.
https://openpaymentsdata.cms.gov/ My wife's TPN provider has paid $5 million to MDs, most of which is for consulting. The top recipient is in Austin, TX., with $350,000 paid in 2023.

Our medical system is pure insanity.

I am grateful for every sunrise and my morning espresso.
Click to expand...

So sorry to hear this , thoughts and prayers sent !!

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