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Being Grateful in the Final Stages

Discussion in 'Personal & Emotional Support' started by pasotaco, Mar 2, 2015.

  1. Mar 2, 2015 at 8:14 PM
    #1
    pasotaco

    #1
    pasotaco [OP] Well-Known Member

    Joined:
    Jul 5, 2011
    Member:
    #59378
    Messages:
    136
    Gender:
    Male
    First Name:
    Ryan
    Central Coast, CA
    Vehicle:
    2013 4x4 Access Cab
    LCE headers, King 2.5 Coilovers w/ res, TC UCA's, King resi's in rear, Geared to 4.88, rear locker, Timbren Bump stops, All Pro Leafs, Carrier bearing drop kit, ARB onboard air,
    I'm not very good at asking for assistance but here it goes...

    About 7 years ago my wife started having medical problems. At first we thought it was a slipped disc in her back but the MRI's told a different story according to her back surgeon. After getting MRI's from her the sacrum to the cranium we were sent to the Neurologists. This was before the affordable health care act and her insurance stated it was pre-existing condition. At this point people, my self included, were thinking that this might be MS. The neurologist informed us it wasn't but it was a movement disorder problem and sent us to UCLA medical. What she was finally diagnosed with was MSA Multiple System Atrophy, which is basically the rarest, nastiest, most aggressive form of Parkinson's disease.

    In seven years the disease has progressed quite steady until last year when she was diagnosed with breast ductile carcinoma stage 2. After this and her surgery the disease has progressed very rapidly. Besides her body shutting down it is now affecting her ability to think clearly which honestly is the toughest part.

    It's crazy how someone can go from a healthy fitness instructor who taught boot camp class, spin class, and would literally light up a room with a smile that the whole room would feel, to being unable to walk, sit up in a chair unassisted, speak, think clearly in a such a short period of time and at such a young age.

    The one thing I am incredibly grateful for is that she is not is a lot of pain, and we believe that her days of struggling and suffering are getting to closer to being over. I needed to vent, thanks for listening those of you that did.

    After her legs first stopped working all together, about 3 years ago, she could still sit up pretty good, we did a lot of driving (I couldn't really find anything else she could do without struggling) in the back county of the Sierra's and Yosemite with my Tacoma. See really enjoyed it and we went to many amazing place like the avenue of Giants in the Sequoia's, Obsidian Dome, etc.

    Anyway before I type a novel, her friends have set up a fund to assist us with the ever mounting expenses we are facing due to her condition. We have had to hire in home care, which has added up very fast. We have hospice assisting us where they can and friends and family where they can.

    The link to her fund is:
    No amount is too small and she is a huge fan of the band The Who, and is know to the a lot of her friends as WHOBABE.

    God Bless,

    Thanks for listening, this was Erica before MSA...
    [​IMG]
     
    pasotaco, Mar 2, 2015
    #1
  2. Mar 2, 2015 at 8:22 PM
    #2
    FrankNasti

    #2
    FrankNasti Well-Known Member

    Joined:
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    496
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    First Name:
    Frank
    Anywhere the Army tells my wife to go.
    Vehicle:
    Subaru Forester
    The toddler and baby seat mod.
    My condolences during this time, my thoughts and prayers will be with y'all.
     
    FrankNasti, Mar 2, 2015
    #2
  3. Mar 4, 2015 at 3:00 PM
    #3
    neverstuck

    #3
    neverstuck Well-Known Member

    Joined:
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    Matt
    Vancouver Island
    Vehicle:
    13 DCLB sport
    slide-in camper, OME Nitros w 884's and Dakars, Michelin A/T2, Pro EFX heated towing mirrors, Timbren HD bumpstops, KB VooDoo bed rails and tailgate cap, ImMrYo rvm bracket, G-Tek Fab door sill protectors, Ultragauge, window visors, hood deflector, Wet Okole seatcovers, in-vehicle safe.
    Sorry for everything you two are going through Ryan. I know how hard it is seeing your wife critically ill and unable to enjoy life the way she deserves. I'm glad you were able to have some great times together touring around in your truck seeing some beautiful country and that was probably the best thing any member on this forum has done with their truck in a long time. Be strong for her and never take a moment with her for granted.
     
    neverstuck, Mar 4, 2015
    #3
  4. Mar 4, 2015 at 3:08 PM
    #4
    T Fades

    #4
    T Fades Well-Known Member

    Joined:
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    2,709
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    Simi Valley, CA
    Vehicle:
    '11 PreRunner V6 2wd DCLB
    Satoshi, debadged, rear view mirror bracket, tail gate hose clamps, trimmed mud flaps.
    My prayers and thoughts sent to you and Erica!
     
    T Fades, Mar 4, 2015
    #4
  5. Mar 4, 2015 at 3:21 PM
    #5
    Sje1124

    #5
    Sje1124 Well-Known Member

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    Sean
    Louisiana
    Vehicle:
    2010 DBL Cab TRD OR 4x4
    Just a few
    Extremely sorry to hear this. We are praying for you and Erica!
     
    Sje1124, Mar 4, 2015
    #5
  6. Mar 4, 2015 at 3:27 PM
    #6
    newertoy

    #6
    newertoy Well-Known Member

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    Kevin
    East Tn
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    2" lift AAL and Bilstiens-front-rear,front diff drop. main drive drop
    X2
     
    newertoy, Mar 4, 2015
    #6
  7. Mar 5, 2015 at 9:45 AM
    #7
    Butano

    #7
    Butano Active Member

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    Louis
    Denver, CO
    Vehicle:
    2015 Red 6-speed
    My prayers are with you.
     
    Butano, Mar 5, 2015
    #7
  8. Mar 5, 2015 at 5:07 PM
    #8
    pasotaco

    #8
    pasotaco [OP] Well-Known Member

    Joined:
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    Messages:
    136
    Gender:
    Male
    First Name:
    Ryan
    Central Coast, CA
    Vehicle:
    2013 4x4 Access Cab
    LCE headers, King 2.5 Coilovers w/ res, TC UCA's, King resi's in rear, Geared to 4.88, rear locker, Timbren Bump stops, All Pro Leafs, Carrier bearing drop kit, ARB onboard air,
    Thank-you for your thoughts, prayers, and support. It is appreciated!!!
     
    pasotaco, Mar 5, 2015
    #8
  9. Mar 5, 2015 at 5:10 PM
    #9
    T4RFTMFW

    #9
    T4RFTMFW Well-Known Member

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    Sorry to hear it. Prayers sent your way.
     
    T4RFTMFW, Mar 5, 2015
    #9
  10. Mar 5, 2015 at 5:13 PM
    #10
    Gearheadesw

    #10
    Gearheadesw must modify

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    So hard, prayers sent.
     
    Gearheadesw, Mar 5, 2015
    #10
  11. Mar 5, 2015 at 5:16 PM
    #11
    Steves104x4

    #11
    Steves104x4 Well-Known Member

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    Buffalo NY
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    BUCKLE UP! It makes it harder for Aliens to pull you out of your Truck.
    What a fantastic woman. Prayers sent.
     
    Steves104x4, Mar 5, 2015
    #11
  12. Mar 5, 2015 at 5:32 PM
    #12
    JimboAnz

    #12
    JimboAnz #OldNorm

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    Charlotte (Cornelius) NC
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    Hang tough.
     
    JimboAnz, Mar 5, 2015
    #12
  13. Mar 7, 2015 at 11:52 PM
    #13
    PatriotOfAmerica

    #13
    PatriotOfAmerica Well-Known Member

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    Reed
    Good Ole' Kentucky
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    33'' kanati mud hogz arb front bumper are camper shell 42'' cree light bar color match fender flares
    prayers sent out, the Lord is watching over both of you
     
    PatriotOfAmerica, Mar 7, 2015
    #13
  14. Mar 8, 2015 at 4:43 AM
    #14
    coffeesnob

    #14
    coffeesnob Well-Known Member

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    prayers for you
     
    coffeesnob, Mar 8, 2015
    #14
  15. Mar 8, 2015 at 5:05 AM
    #15
    GTechoma

    #15
    GTechoma Well-Known Member

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    GA
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    EGR inchannel vent visors, OEM bed mat, Wet Okole front and back seat covers, BFG AT's
    Prayers sent for you, Erica, and your families.
     
    GTechoma, Mar 8, 2015
    #15
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