Good vibes, Good prayers and Hopeful wishes.

I'm not positive but I'm thinking I must have messed up my back pretty bad from the seizures, I'm pretty much in constant pain from my back that I can't even walk much. I'm doing my best to get through but now it's becoming a fight, shit was a apple pie contest til they threw up immense amounts of pain and headaches from high sugars.

 

Prayers sent.

 

Thank you guys! I don't mean to update so much its just kind of nice to rant and go over the day.

 

Finally! Sounds like il be getting off all these tubes tonight no more large doses of steroids means no insulin drip! YAY!

 

No more blood glucose blood checks since 1 last night, no more constant insulin or steroids which means I'm on the fast track home doctors say as soon as they hear from my transplant doctors they will figure out if I can go home tomorrow or what not, I always hope for sooner but in all honesty I'd like to make it home and STAY there hahahaha

 

Hopefully this is one of my last updates to the saga of the new lung adventure. Today was, HORRIBLE. Started off great, took a shower, Walked to subway got lunch talked to my doctors...Everything was good until about 4pm, I was told to try to take stairs to see how well i can do with those so i walked up about 4 flights and from there i knew something was wrong My leg started getting swollen and my back started killing me, So i made it back to my room and told them about what happened. My father has really bad Vericose veins and im pretty sure thats what i was feeling in my shins, I told the nurse to PLEASE inform the doctor and have him look at... Long story shortened, No doctor, No xray or anything, So i went on with lunch and ate and from there i got a really bad stomach ache, Couldnt eat anymore...Couldnt even drink water so they gave me two different IV nausea meds and they didnt help, i complained probably 3-4 times about the pain in my back and legs and since i couldnt take pills, They gave me... Nothing. So after that my sugars decided to go sky high and give me another pain, A massive headache, So finally i decide to just swallow the pain pills as best as possible... No relief so they give me MORE tylenol and that helped a little but as i sit typing im STILL in pain in my legs back and head. The doctors first solution to my leg problem was, "lets wait it out to see if it goes away" And when i told them i wouldnt be ordering dinner due to my stomach ache they got mad at me and told me i should at least eat some soup... Little did they know that i had a feeling my sugars were already high, Only 418 Jeez whats the problem!

Anyways, LONGGGG story short, I will be getting everything organized and i WILL be going home tomorrow. Fuck this place, I get treated like some kind of addict or criminal of somesort. As long as im not going Against Med Advice, my plan is to leave tomorrow.

Ive reached my breaking point and im surprised i havent ripped someones head off... Yet. I made a whole list of things to go over with my doctor tomorrow and i will make sure he hears me LOUD and CLEAR.

They already had an enraged patient today because they kept calling him a liar and telling him he needs to Use some common sense, Needless to say he is gone which hell yah man POWER TO YA! if you cant respect me, Then theres no way il be dishing out any free respect back.

Sorry for the long update but i definitely needed to RANT.

 

I'm glad you have a place to vent your frustrations, it's probably a real good thing to get to say these things you're feeling!
Just try to stay positive man, we're all pulling for you to come out of this with flying colors!

 

Ugh, First conversation didnt go well. Apperently the only thing holding me back is a level in my blood, Its for my anti rejection meds but they slowly increase the dose everyday and honestly, over two weeks is to much, Im gonna see what my level is today but in all honesty its going to be a battle to get me to stay here past Today. Will keep everyone updated, Thank all of you for the support and words. I fully plan on getting back to my life its just... A lot of bumps in the road.

 

Thanks man

 

Listen, some of the best advice you get in life comes from those who don't like you so here it goes.... Quit your god damn bitching! You got a miraculous gift and a second lease on life and you're your going to tap out on some hospital stay? You think going home is going to increase your chances of recovery? C'mon man. Sack up and be a man. You went on and on about how this was going to save your life and now you're going to let a little discomfort interrupt your recovery? You just went through a MAJOR operation and now you're going to jeopardize that by acting like a spoiled fucking brat who doesn't get their way? It's this exact same type of poor decision making that got you in this position in the first place so I think it's time you conceding the decision making to the experts and do what they tell you to the T regardless of if you understand why or not. This could be a LOT worse and there are tens of thousands of people who would kill to be in your position right now. Don't piss that all away because the road to recovery has a few bumps. Don't forget that you weren't even going to be put on the donor list but you chose to fight for it. Now you're going to just give up? WTF is wrong with you man?? For crying out loud!!!!

 

This x1000...replacing a pair of lungs is not like replacing a part on a truck.

If you go home before the markers are normal, doctors will have you sign waiver papers so they are not liable when your body rejects the lungs then you suffocate. And insurance will use you as an example of a 500k project that went down the drain, possibly influencing doctors willingness to give others in your age group the same surgery.

Medicine has gotten pretty damn good in the past 20-30 years, but it still has yet to find a cure for stupid. Doctors get paid well into the '6 digits a year' for a reason.

I am willing to bet doctors told you how well transplants have gotten nowadays, and they probably mentioned arms, legs, faces, ect....all things that you can live with out. You can't live with out a pair of lungs.

So i am going to say please do what the doctor tell you to do. If your body rejects the lungs because you don't take your meds or get you heart rate up to quick, or something, the lungs could come out, and you will be on a ventilation machine probably wishing you had your old lungs back.

With that being said....Hope you get feeling better soon

 

x2. You need to man up and deal with it. I know it is hard, but this is your life you are fighting for. Don't waste the donors gift to you when thousands of others will die because they didn't get the chance you did.

 

Another insightful post from Ost. Theres a difference between giving up and venting, If i had given up i would be home. I know exactly the kind of gift i was given and exactly what i fought for. Excuse me when being in a hospital over two weeks and having constant struggles gets to me. I know what im in for and i know what i have to do. I will never give up but i cant promise i wont have moments where im completely overwhelmed. Jesus man give me a break Ost.

I will never give up, I will never go against medical advice, Im not stupid these doctors know what they are talking about but sometimes i wonder if im in there best interest. Im not going to disrespect such a gift so dont worry about that

 

What a condescending insufferable prick you are.

Yeah, venting is saying 'Man, this really sucks. I'm working so hard and feel like it just keeps piling on. These doctors piss me off at times but I get that they're just trying to do what's best for me. I get really sick of all these meds and all the exercises they have me doing.' THAT is venting.

Giving up is saying 'To hell with these doctors and I'm not doing anything they say anymore. I'm not taking meds anymore and I'm not doing anything that gives me the best chance at success. I'm ripping tubes out and doing whatever I want and regardless of their expert medical opinion I'm going home tomorrow.' This is exactly the type of post you've been making lately and you did it enough that I couldn't handle reading your wining anymore and felt the need to be the one to tell you what you need to hear instead of what you want to hear.

So you now say that you would never give up and you would never go against medical advice yet that's ALL that your posts have said lately. Ok. Whatever.

 

I spent 80 days ON A DAMN SUB 2X, WITH NO DAYLIGHT!!!! More shorter trips to boot. I lost 8 months of 1989 underway. The least you can do is focus on your task, stay in as long as they recommend. stay with the medical advice. Maybe its the least you can do to respect the poor donor that can't be here. I don't want to guilt trip you, but hold in there, for them.

I think you said you will be on some meds for life. You can no longer be the restless youth with ways around things.You'll figure this out, just listen to them on how to get there. Be patient. Find your resolve.

 

Sometimes I feel my doctor bs's sometimes but that's never the case. I wasnt walking for about 10 months, and for the last 3.5 i was in bed wondering if i would be ble to makebit to tje bathroom or how i would be able to get dressed. My doctor ordered a few full panel blood tests where they took out 24 large vials each which which was not cheap.

Turns out he he was right with an hunch he never told me because he was unsure of it or not.

If you have a question ask your doctors, you may not understand the answer they give you but its better than not knowing.

And if they are doing stuff in their own interest, that's an easy malpractice lawsuit and you will cash out.

 

I just want to be healthy! hahaha

 

Then follow the doc's orders!!! You just had a transplant and your body has to adjust. You said you had to fight to get put on the transplant list, well, now you have to fight to get your body used to the new parts.

 

Well fuck bring out the fighter! haha nah i was just in a rut guys, No worries im not giving up! Il fight til my last breath.

 

Just a random update, Yesterday was... Challenging to say the least... Everything kind of just built up and i boiled over. Please dont for a second think i will ever do anything to jepordize this amazing gift i was given! Sometimes i just get overwhelmed and consumed into myself. I trust these doctors and i know they are only looking out for me, Sometimes that just gets cloudy in my visions. I will continue to fight for this gift and will forever respect the gesture from god.

Thank all of you for being straight up with me and knocking some sense in me, OST even you! You can be a dick but sometimes you manage to hammer the nail. Next time dont go so easy!