Multiple Sclerosis

Unfortunately it looks like I am diagnosed with MS. This came as quite a shock as I am a normal healthy as an oxe 30 yr old male with no preexisting conditions or family history. I had my first flare up 2 years ago that severely affected my vision. Docs had their MS suspicions, but could neither confirm nor deny and quickly recovered with the steroids so it was kind of written off. Relapsed last week and my vision is not responding as well to treatment this time. Docs say its pretty clear now. Many more tests and specialists in the works. Was just wondering if anyone had any real life experience dealing with this or any words of wisdom/encouragement. Still in shock and really at a loss emotionally... Shit sucks!

 

I have Visual Snow Syndrome and Generalized Anxiety, it’s tough man ik what youre going through. Anger, confusion, desperation, and depression. Dont change, live your life man. Live life to the fullest dont quit bro, I’m praying for you. I hope you have love ones around you. This isnt the end just a new chapter bro. Smoking cbd helped me with anxiety.

 

Appreciate the words brother. Hoping this flare goes away soon so my vision comes back good enough to read up on how to fight this shit head on. Ain't going down without a fight that's for damn sure.

 

Specialist appt at USC set for next thursday

 

Thoughts and prayers coming your way
Stay strong bud. Medicines have come along way these days.

 

Thanks man. That is the understanding I'm getting from my primary doc as well. They say the chronic treatments can often almost prevent the relapses from coming back. Just need to find the right treatment for me, that hopefully doesn't open its own can of worms via side effects.

 

I’m sorry for your diagnosis. My prayers and good thoughts to you. I do not have ms but have knowledge of it. The specific symptoms, progress of the disease, and frequency and duration of episodes cannot be predicted. It’s not known what causes it and currently there is no cure but there is treatment. It is generally diagnosed between age 20 to age 50.
My suggestion for you is to be evaluated and treated at a university hospital. The reason is that university hospitals are cutting edge, they have the latest and greatest in treatment. They are often years ahead of the rest of the medical community. I see you are in California. A couple suggestions include UCSF Med Center, Stanford Hospital, UCLA.
Good luck and may God bless.

 

Thanks Ken. Finished up at USC last week. They say it is "extremely likely" I have it. They want more scans and tests this month. Also simultaneously talking with UCSF to line up an appt likely next month for a 2nd opinion. USC says we caught it early so we can essentially "freeze" this and eliminate all future relapses. They had a very positive outlook for me which was reassuring. We will see what the additional tests and SF says. Fingers crossed.

 

I am sorry this disease has affected you.

 

Sorry to hear about this !! , thoughts and prayers sent

About a year ago I was diagnosed with nerve disorder called Demyelinating disease . This disease causes the mylene sheathing of the nerves to dissolve from the loss of dopamine in the brain

After alot of tests including CT scans and MRI's of my brain the Neurologists have changed their diagnosis to Parkinson's disease . I'm now taking twelve pills per day to control my tremors and other side affects of Parkinson's disease

I know the Parkinson's disease is a direct result from chemical exposure in the Military from TCE and PCE solvents and possibly exposure to Agent Orange

 

Were you originally diagnosed with MS? It is a demyelinator as well. My uncle who married in the family has Parkinsons. I have no family history of MS(key indicator), no known exposures, and MS is mostly found in women... Just the luck of the draw I guess...

 

Yes I was originally diagnosed with MS

 

Both Universities have confirmed the diagnosis. They say we caught it early and if things go the way they think/predict, it will have minimal impact on my life for now. I start my monthly injection treatments around thanksgiving. Chalking this up as a win, I guess .

 

Hoping for the best and that those injections slow down the disease

 

Best place you could go.
And if money is an issue, they will treat you for free. Seriously, check it out. Good friends of mine started this place.

https://oakclinic.com/

 

On a medication regiment and doing/feeling great!